UBC Health and its partners are committed to being part of ongoing conversations about the collection and use of disaggregated data. A series of disaggregated data dialogue sessions hosted by UBC Health resulted in participants recognizing the need for principles and guidelines for the collection and use of disaggregated data. To start this process, UBC Health is working with the research community to identify and synthesize resources that can support researchers in applying respectful and equity-addressing principles in the collection and use of disaggregated data.

We want to hear from you. If you are involved in research, we invite you to use our interactive online tool to share resources that guide your work. This may include resources you have developed as well as those created by others. Principles, guidance, reports, papers, authors, individuals, UBC units, and/or organizations are all relevant—whatever you have found useful is of interest to us. 

How to share your resources

  1. Review these guiding questions and instructions to help identify resources and navigate the online tool that’s being used to capture resources. 
  2. When you’re ready to add your resources, access the online tool.
  3. You can also comment on and rate resources added by others.
  4. Provide your resources and input by June 30, 2022.

After gathering the information, UBC Health will synthesize and highlight results at future sessions of the Disaggregated Data Dialogue Series, with the intent of creating a set of evolving best practices for disaggregated data. 

If you have any questions or additional resources, please reach out to Shelly Keidar, Project Coordinator, UBC Health at shelly.keidar@ubc.ca.

About the Disaggregated Data Dialogue Series

The UBC Health Disaggregated Data Dialogue Series brings together researchers, students, and community to discuss the collection and use of disaggregated data. The dialogue series was developed in response to the BC’s Office of the Human Rights Commissioner report Disaggregated demographic data collection in British Columbia: The grandmother perspective

To be part of the UBC Health Disaggregated Data Dialogue community and receive a copy of the resources report, as well as invitations to future dialogue sessions, subscribe to the disaggregated data email list.

Add your resources now

Posted on May 9, 2022


  • Interdisciplinary Research