Disaggregated Data Dialogue Series

Powerful statements are made possible by disaggregated data. By making systemic inequalities in our society visible, data can lead to positive change. The same data, used or collected poorly, can reinforce stigmatization of communities, leading to individual and community harm. – BC’s Office of the Human Rights Commissioner

In response to the BC’s Office of the Human Rights Commissioner report Disaggregated demographic data collection in British Columbia: The grandmother perspective, UBC Health created the Disaggregated Data Dialogue Series to bring together researchers, students, and community to discuss the responsibilities of researchers and UBC as an institution around the collection and use of disaggregated data. The grandmother perspective report calls on researchers to not only describe but also act to reduce inequities that disaggregated data reveal. It also describes the importance of involving communities in decisions about data use and makes other recommendations to guide data sharing and use.

The dialogue series reflects UBC Health’s commitment to being part of ongoing conversations about the collection and use of disaggregated data. By convening researchers and community members, we are advancing our collective understanding about how disaggregated data can be used to address inequalities and advance human rights. 

Resources for Respectful and Equity-Oriented Collection and Use of Disaggregated Data

UBC Health is working with the research community to identify and synthesize resources that can support researchers in applying respectful and equity-addressing principles in the collection and use of disaggregated data.

Join the conversation

We want to hear from you. If you are involved in research, you are invited to use an interactive online tool to share the resources that guide your work. This may include resources you have developed as well as those created by others. Principles, guidance, reports, papers, authors, individuals, UBC units, and/or organizations are all relevant—whatever you have found useful is of interest to us. Participants can add their resources, comment on those added by others, and rate resources. 

After gathering this information, UBC Health will synthesize what you provide. Future sessions of the Disaggregated Data Dialogue Series will highlight results, with the intent of creating a set of evolving best practices for disaggregated data. 

How to share your resources

  1. Review these guiding questions and instructions to help identify resources and navigate the online tool that's being used to capture resources. 
  2. When you’re ready to add your resources, access the online tool.
  3. You can also comment on and rate resources added by others.
  4. Provide your resources and input by June 30, 2022.

If you have any questions or additional resources, please reach out to Shelly Keidar, Project Coordinator, UBC Health at shelly.keidar@ubc.ca

Stay informed about future dialogue sessions

As a member of the UBC Health Disaggregated Data Dialogue community, you will receive a copy of the resources report and invitations to future dialogue sessions. We encourage you to subscribe to our emails.

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