Disaggregated Data Dialogue Series

Powerful statements are made possible by disaggregated data. By making systemic inequalities in our society visible, data can lead to positive change. The same data, used or collected poorly, can reinforce stigmatization of communities, leading to individual and community harm. – BC’s Office of the Human Rights Commissioner

In response to the BC’s Office of the Human Rights Commissioner report Disaggregated demographic data collection in British Columbia: The grandmother perspective, UBC Health created the Disaggregated Data Dialogue Series to bring together researchers, students, and community to discuss the responsibilities of researchers and UBC as an institution around the collection and use of disaggregated data. The grandmother perspective report calls on researchers to not only describe but also act to reduce inequities that disaggregated data reveal. It also describes the importance of involving communities in decisions about data use and makes other recommendations to guide data sharing and use.

The dialogue series reflects UBC Health’s commitment to being part of ongoing conversations about the collection and use of disaggregated data. By convening researchers and community members, we are advancing our collective understanding about how disaggregated data can be used to address inequalities and advance human rights. 

Resources for Respectful and Equity-Oriented Collection and Use of Disaggregated Data

UBC Health is working with the research community to identify and synthesize resources that can support researchers in applying respectful and equity-addressing principles in the collection and use of disaggregated data. Future sessions of the Disaggregated Data Dialogue Series will highlight results of the synthesis, with the intent of creating a set of evolving best practices for disaggregated data. 

Stay informed about future dialogue sessions

As a member of the UBC Health Disaggregated Data Dialogue community, you will receive a copy of the resources synthesis and invitations to future dialogue sessions. We encourage you to subscribe to our emails.